Dedicated Support

GILENYA Go Program support for your child

Dedicated support tailored to you and your child

The GILENYA® Go Program Support Team is here to make sure you and your child have someone to lean on when you need it. A dedicated Support Specialist will be available to make sure you and your child's GILENYA journey is as smooth as possible.

Here are some of the things GILENYA Go Program Support Specialists can do for you:

Gilenya Go Program support benefits

$0 Co-pay* available for eligible children taking GILENYA


Finances should not come between someone with relapsing MS and treatment. More than 95% of people with insurance have coverage for GILENYA and your dedicated Support Specialist is here to help you explore options when it comes to paying for your child's treatment.

After we receive your child's GILENYA Start Form, your Support Specialist will check your existing insurance coverage and call to explain your benefits. You and your child will also get a GILENYA Go Program Welcome Kit which can help you learn more about getting started on GILENYA.


We want to make sure GILENYA is right for your child. That's why there are some tests your child will take before starting GILENYA, which your dedicated Support Specialist will schedule. The tests provide information that can help determine if GILENYA is right for your child. These include:

A blood test

A Blood Test

This checks liver function and how many white blood cells someone has in their body before starting GILENYA.

An Eye Exam

An Eye Exam

This checks for a visual problem called macular edema. You should schedule a follow-up eye exam for your child 3 to 4 months after starting GILENYA.

An Electrocardiogram (ECG)

An Electrocardiogram (ECG)

This checks your child's heart activity and sets a baseline heart rate prior to his or her first dose of GILENYA.

Scheduled Vaccinations

Scheduled Vaccinations

If you are the caregiver of a child between the ages of 10 and 17 who will be starting GILENYA, check with your child's doctor about your child's vaccine schedule, as it is recommended that it be completed before starting treatment with GILENYA.


Your child will also be monitored for at least 6 hours during his or her first time taking GILENYA, because his or her heart rate is expected to temporarily slow down the first time taking GILENYA. This process can be done in a doctor's office, in a medical facility, or even in the comfort of your own home. For more information about this first-dose observation (FDO), see our FDO information page.

Your dedicated Support Specialist will check in with you after your child's first dose to make sure everything is going smoothly. If your child taking GILENYA weighs 88.2 lb or less, they will start with a 0.25 mg dosage and the GILENYA Go Program will supply his or her refills. After exceeding that weight, his or her health care professional may recommend your child move up to the 0.5 mg dosage, and at that time, your child will be monitored again during the first dose.



If you still have questions, feel free to call our dedicated parent line at 1-800-598-1410, 8 AM to 9 PM ET, Monday through Friday.§

§Excludes public holidays.


*In 2016, most eligible patients paid a $0 co-pay. Call 1-800-GILENYA for details. People for whom GILENYA has been prescribed are required to report any benefits they receive through the GILENYA Prescription Co-Pay Support Program to their commercial insurance company. Limitations apply. Valid only for those with commercial insurance. Offer not valid under Medicare, Medicaid or any other federal or state program. Not valid for cash-paying patients, where product is not covered by patient's commercial insurance, or where plan reimburses you for entire cost of your prescription drug. Offer is not valid where prohibited by law. Valid only in the US and Puerto Rico. This program is not health insurance. Offer may not be combined with any other rebate, coupon, or offer. This program is subject to termination or modification at any time.

As of February 2018. Novartis Pharmaceuticals Corporation does not endorse any particular plan. Check with your individual health plans.


See how GILENYA has been shown to help children as young as 10 and their parents fight back against MS.



Take a look at some important safety information to see if GILENYA may be right for your child.

Novartis ISI Novartis ISI
Novartis ISI
Novartis ISI

Speak up and share your message. Tell multiple sclerosis (MS) how you really feel by posting your message on our "HEY MS" message board.

Make sure your voice is heard. We love that you want to say "Take This!" to relapsing MS, but there are still some words even we can't use—words that might not be appropriate. They're defined in the Community Guidelines below. But have no fear; we'll give you a heads up if you use any problematic words by highlighting them after you hit submit. So, go for it, and tell relapsing MS how you really feel!

  • Do not include medical advice or any non-approved use of GILENYA

  • No profane, indecent, or inappropriate language in your message or image, please (a no-no)

  • Avoid using your full name and/or e-mail address in your message, so this personal information remains private and protected

  • Do not include spam, such as links to or URLs for other websites or social networks in your message

  • Refrain from sharing any treatment and/or dosage information, as well as names of specific medicines (brand name or generic) and product manufacturers

  • Avoid mention of side effects from GILENYA. We take drug product safety seriously. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit or call

Please note that in order to comply with our Community Guidelines as well as the FDA's Prescription Drug Advertising Guidelines, your statement may be subject to modification, while maintaining the spirit of your message. Your photo and statement may be used in other GILENYA marketing materials



Discover why GILENYA may be right for you and find out how to get started. GILENYA delivers the info straight to you.