Meet the GILENYA Guides

MISSI L.

A foodie who loves the outdoors and enjoys spending time with the animals on her farm

How did you find out you had relapsing multiple sclerosis (MS)?

My relapsing MS symptoms first surfaced when I was taking a road trip with my family. My right foot went numb, then my entire right side went numb as well. I thought I was having a stroke. I went to the ER and was eventually told it was in my head. Years later, I woke up, and the right side of my body was numb. I thought I was having a stroke again. Went to the ER, and the doctor asked me, 'How long have you known you had relapsing MS?'

  • Q. How did things go after your relapsing MS diagnosis?
  • A.I was shocked, confused, and had little information, so I called my sister. She flew down right away to become my advocate, and my in-laws came down to help with the kids.
  • Q. How did you go about finding a treatment for your relapsing MS?
  • A.I worked with my doctor and tried an injectable MS treatment, but I discontinued that and went off all medications. Four or 5 months later, I had a month-long MS relapse that included tingling and numbness on my right side that was a little more severe than the other MS relapses, which concerned me, so I decided to start looking into other treatment options again.
  • Q. What do you tell other people with relapsing MS?
  • A.I want to encourage others to work with their doctor to find a treatment option that works for them. When it comes down to it, I want to do anything I can to help others with relapsing MS and to show people what relapsing MS can look like.
  • Q. How is living with relapsing MS different?
  • A.I've made lifestyle modifications but have managed to live a fulfilling life despite having relapsing MS.
  • Q. Why did you choose GILENYA as your relapsing MS treatment?
  • A.I personally did not respond well to other treatments. I talked to my doctor, and GILENYA seemed like a good option for me to try. Taking a pill works well for my lifestyle, and I'm free from injections."*
  • Q. Why are you a GILENYA Guide?
  • A.I want to give back. Being a Guide helps me talk to others, and hopefully I can help them take charge of their health. Talk to your doctors and find the best relapsing MS treatment for you.

*GILENYA can result in a slow heart rate when first taken. You will be observed by a health care professional for at least 6 hours after you take your first dose. You may need to repeat this monitoring if you miss a dose or are a child who is moving to 0.5 mg from the 0.25 mg dose.

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  • Taking a pill works well for my lifestyle, and I'm free from injections.*

  • MISSI L.
  • GILENYA Guide
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Novartis

Speak up and share your message. Tell multiple sclerosis (MS) how you really feel by posting your message on our "HEY MS" message board.

Make sure your voice is heard. We love that you want to say "Take This!" to relapsing MS, but there are still some words even we can't use—words that might not be appropriate. They're defined in the Community Guidelines below. But have no fear; we'll give you a heads up if you use any problematic words by highlighting them after you hit submit. So, go for it, and tell relapsing MS how you really feel!

  • Do not include medical advice or any non-approved use of GILENYA

  • No profane, indecent, or inappropriate language in your message or image, please (a no-no)

  • Avoid using your full name and/or e-mail address in your message, so this personal information remains private and protected

  • Do not include spam, such as links to or URLs for other websites or social networks in your message

  • Refrain from sharing any treatment and/or dosage information, as well as names of specific medicines (brand name or generic) and product manufacturers

  • Avoid mention of side effects from GILENYA. We take drug product safety seriously. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call
    1-800-FDA-1088

Please note that in order to comply with our Community Guidelines as well as the FDA's Prescription Drug Advertising Guidelines, your statement may be subject to modification, while maintaining the spirit of your message. Your photo and statement may be used in other GILENYA marketing materials

 
 

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