Meet the GILENYA Guides

Rehshetta S.

Mother • Manager for an in-home health agency

What's your relapsing multiple sclerosis (MS) diagnosis story?

Well, my first MS symptoms came as I was recovering from the flu. I noticed numbness on my face and my tongue was numb. Concerned, I saw my doctor who referred me to a neurologist. An MRI and spinal tap confirmed everyone's suspicion of relapsing MS.

  • Q. What was one of your roughest times?
  • A.I was about to change medications once again when I discovered I was pregnant. For 9 months I was off medication and did really well. Two days after my daughter was born, I had a relapse that kept me from being able to get out of bed. At the time when she relied on me the most, I was utterly helpless. I had a new reason to make sure MS did not run my life.
  • Q. How do you make a statement against relapsing MS?
  • A.I have a tattoo on my shoulder I got shortly after diagnosis. It says, 'courage and determination.' I got it there to remind me to work to overcome the challenges of relapsing MS. Having a positive attitude and not allowing self-doubt is one of my big strengths.
  • Q. What do you tell other people with relapsing MS?
  • A.You should strive to be in control of what happens to you, and you can't give up.
  • Q. How has living with relapsing MS changed your view?
  • A.My mother is my role model. She has taught me a lot about being a survivor. Now that I have relapsing MS and am a mom too, I know why she showed me such a fine example of courage. I want my daughter to see the example I set and learn how to face her challenges, whatever they may be.
  • Q. What interested you to learn more about GILENYA®?
  • A.When I was diagnosed, I started on one injectable treatment after another. I was truly struggling, though. I had a variety of reasons to keep looking for something else. I had a lot of family experience with MS, and I just knew that if you keep searching, you can find your way to a treatment that's best for you.
  • Q. What do you get out of being a GILENYA Guide?
  • A.I want to show other people what living with relapsing MS can look like. I want to encourage them to keep fighting just like I do—even after a relapse. I'm also aware that when I help others to find a better way to deal with their MS, it makes me feel stronger and more valuable. So you could say I'm giving help, but I'm also getting some in return.

*GILENYA can result in a slow heart rate when first taken. You will be observed by a health care professional for at least 6 hours after you take your first dose. You may need to repeat this monitoring if you miss a dose or are a child who is moving to 0.5 mg from the 0.25 mg dose.

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Speak up and share your message. Tell multiple sclerosis (MS) how you really feel by posting your message on our "HEY MS" message board.

Make sure your voice is heard. We love that you want to say "Take This!" to relapsing MS, but there are still some words even we can't use—words that might not be appropriate. They're defined in the Community Guidelines below. But have no fear; we'll give you a heads up if you use any problematic words by highlighting them after you hit submit. So, go for it, and tell relapsing MS how you really feel!

  • Do not include medical advice or any non-approved use of GILENYA

  • No profane, indecent, or inappropriate language in your message or image, please (a no-no)

  • Avoid using your full name and/or e-mail address in your message, so this personal information remains private and protected

  • Do not include spam, such as links to or URLs for other websites or social networks in your message

  • Refrain from sharing any treatment and/or dosage information, as well as names of specific medicines (brand name or generic) and product manufacturers

  • Avoid mention of side effects from GILENYA. We take drug product safety seriously. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call
    1-800-FDA-1088

Please note that in order to comply with our Community Guidelines as well as the FDA's Prescription Drug Advertising Guidelines, your statement may be subject to modification, while maintaining the spirit of your message. Your photo and statement may be used in other GILENYA marketing materials

 
 

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