Trade analyst by day
In his spare time, he can be found swimming and engaging in other water activities
Where did you turn for support when you were first diagnosed? Where do you turn now?
“I didn't really. I'm pretty independent. I did have great friends who would do my injections because I hated doing it so much. Now if I need support, I have my GILENYA family. We call ourselves the 'Uber Awesome Fingolimoids' (inside joke) and I love them.”
- Q. What would you tell someone who's been recently diagnosed with relapsing MS?
- A. “It's not the end. If there was any time to have MS, it's right now. Medicine has come so far.”
- Q. What was your reaction when learning about the baseline assessment tests and what the first-dose observation (FDO) would be like?
- A. “No hesitation.”
- Q. What was your first day on GILENYA like? What did you do to pass the time (during the 6-hour monitoring of the FDO)?
- A. “Uneventful. Heart rate went down for a little while, but came right back up. Everything went smoothly. I got to know my nurse pretty well, and I brought my iPad, so I was plenty entertained.”
- Q. Was there a difference between what you anticipated for the first day on GILENYA and what actually took place?
- A. “Nope, everything went smoothly.”
- Q. What does being a GILENYA Guide mean to you?
- A. “I get to hear people's stories, and put them at ease about the unknown and unfamiliar. People might think that I'm helping them out, but I feel like I'm the one benefitting.”
- Q. What would you tell someone doing their own research that may be confused between what's fact and fiction?
- A. “There is no cure for this yet. Medications have risks and possible side effects. In my experience, I have had zero complications or side effects while on GILENYA.”
- Q. How many relapses were you experiencing before you started GILENYA?
- A. “At least 1 or 2 a year if not more.”
- Q. How many relapses have you had since you started taking GILENYA?
- A. “Zero. At least, nothing noticeable. I still know I have relapsing MS, but no defined event and no further physical decline for me." Everyone's experiences are different.
- Q. In what ways, if any, has your journey with relapsing MS had a positive impact on your life?
- A. “I've been able to meet a lot of amazing people, and I've been able to see what's really important. Life is about who you share it with.”
- Q. Did you join any online or local support groups when you were first diagnosed? If not, when did you decide to find a community to support you through this journey?
- A. “I wasn't involved at all until GILENYA. Being a GILENYA Guide has given me a voice and a fantastic circle of friends.”