Meet the GILENYA Guides

Allie C.

Special education schoolteacher • Master's student

How did you find out you had relapsing multiple sclerosis (MS)?

I was having really bad headaches. The doctor prescribed migraine medicine, but my headaches persisted. My mother came to my next appointment and persuaded the doctor to look for another cause. I was referred to a neurologist and had an MRI and spinal tap that indicated relapsing MS.

  • Q. What was your initial treatment like?
  • A.When I was first diagnosed, I started on an injectable medication. That really was difficult for me for a variety of reasons, but mostly because of injection-site reactions.
  • Q. What's your stance on relapsing MS?
  • A.At first, finding out I had MS, I sorta broke down. But with time and perspective, my MS helped me make a real commitment to myself. Today I'm more motivated to stay active and to try not to let anything hold me back. To be honest, I've always been one to try new things and have fun. Now I just make sure that I focus on all my interests, not just work.
  • Q. What do you tell other people with relapsing MS?
  • A.I would encourage others with MS to keep trying. Never give up. There's a treatment that will be right for you. There is so much improvement—all the medicines and technologies available for MS treatment have come such a long way.
  • Q. How has living with MS changed you?
  • A.I'm trying to encourage myself to get more involved in MS social groups—both online and live meetings. I want to keep learning more and help others.
  • Q. How did you come to find GILENYA®?
  • A.I was preparing to ask my doctor more about GILENYA when the doctor actually brought it up to me. My doctor had already been thinking it might be a good treatment choice for me.
  • Q. Why are you a GILENYA Guide?
  • A.You know MS is very different in different people, and I can't say that because GILENYA is working for me that it will for anyone else. But I am excited to share my story with others. We all learn from each other.

*GILENYA can result in a slow heart rate when first taken. You will be observed by a health care professional for at least 6 hours after you take your first dose. You may need to repeat this monitoring if you miss a dose or are a child who is moving to 0.5 mg from the 0.25 mg dose.


Are you ready for one pill, once a day*? Get tips for talking to your doctor about GILENYA.



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Speak up and share your message. Tell multiple sclerosis (MS) how you really feel by posting your message on our "HEY MS" message board.

Make sure your voice is heard. We love that you want to say "Take This!" to relapsing MS, but there are still some words even we can't use—words that might not be appropriate. They're defined in the Community Guidelines below. But have no fear; we'll give you a heads up if you use any problematic words by highlighting them after you hit submit. So, go for it, and tell relapsing MS how you really feel!

  • Do not include medical advice or any non-approved use of GILENYA

  • No profane, indecent, or inappropriate language in your message or image, please (a no-no)

  • Avoid using your full name and/or e-mail address in your message, so this personal information remains private and protected

  • Do not include spam, such as links to or URLs for other websites or social networks in your message

  • Refrain from sharing any treatment and/or dosage information, as well as names of specific medicines (brand name or generic) and product manufacturers

  • Avoid mention of side effects from GILENYA. We take drug product safety seriously. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit or call

Please note that in order to comply with our Community Guidelines as well as the FDA's Prescription Drug Advertising Guidelines, your statement may be subject to modification, while maintaining the spirit of your message. Your photo and statement may be used in other GILENYA marketing materials



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