Married, father of 2 who understands the need to take care of himself, so he can be there for them
How did you find out you have relapsing multiple sclerosis (MS)?
“In 2005, I experienced my first MS relapse. After ignoring symptoms for 2 weeks, I finally went to the hospital. After many tests, the doctors told me I had relapsing MS.”
- Q. How has living with relapsing MS affected you?
- A. “Being diagnosed in my early 20s made me mature faster. I had to be more responsible so I could accomplish the goals I had set for myself.”
- Q. Where did you turn for support when you were first diagnosed? Where do you turn now?
- A. “My wife (who was my girlfriend at the time). My family and my in-laws to this day have been a great support system.”
- Q. What would you tell someone who's been recently diagnosed with relapsing MS?
- A. “Work with your doc and family to develop a plan to manage your relapsing MS to fit your lifestyle. It's OK to ask for help when you need it.”
- Q. What was your reaction when learning about the baseline assessment tests and what the first dose observation (FDO) would be like?
- A. “I was OK with it. I knew I would be able to move forward with a treatment that worked with my lifestyle.”
- Q. What was your First Day on GILENYA like? What did you do to pass the time (during the 6-hour monitoring of the first dose observation, or FDO)?
- A. “It was a pretty relaxing day. I just hung out at my doc's office and brought my laptop. I was actually able to get a good amount of work done.”
- Q. Was there a difference between what you anticipated for the first day on GILENYA and what actually took place?
- A. “Not really. It was explained to me what I should expect, and it all went as I thought it would.”
- Q. What does being a GILENYA Guide mean to you?
- A. “I take great pride in being a GILENYA Guide. I am able to tell my story, and I hope that it inspires others to be proactive with their battle with relapsing MS.”
- Q. What would you tell someone whose relapses or disease progression is becoming an issue?
- A. “You have to take action and consult with your neurologist to develop a plan. There are other options, and you can find the right one for you.”
- Q. In what ways, if any, has your journey with relapsing MS had a positive impact on your life?
- A. “With relapsing MS, there are a lot of unknowns, and it affects every person differently. Knowing that actually motivates me to enjoy the present and appreciate all I am able to do now.”