Meet the GILENYA Guides

Ryan H.

Sales representative
Married, father of 2 who understands the need to take care of himself, so he can be there for them

How did you find out you have relapsing multiple sclerosis (MS)?

In 2005, I experienced my first MS relapse. After ignoring symptoms for 2 weeks, I finally went to the hospital. After many tests, the doctors told me I had relapsing MS.

  • Q. How has living with relapsing MS affected you?
  • A.Being diagnosed in my early 20s made me mature faster. I had to be more responsible so I could accomplish the goals I had set for myself.
  • Q. Where did you turn for support when you were first diagnosed? Where do you turn now?
  • A.My wife (who was my girlfriend at the time). My family and my in-laws to this day have been a great support system.
  • Q. What would you tell someone who's been recently diagnosed with relapsing MS?
  • A.Work with your doc and family to develop a plan to manage your relapsing MS to fit your lifestyle. It's OK to ask for help when you need it.
  • Q. What was your reaction when learning about the baseline assessment tests and what the first dose observation (FDO) would be like?
  • A.I was OK with it. I knew I would be able to move forward with a treatment that worked with my lifestyle.
  • Q. What was your First Day on GILENYA like? What did you do to pass the time (during the 6-hour monitoring of the first dose observation, or FDO)?
  • A.It was a pretty relaxing day. I just hung out at my doc's office and brought my laptop. I was actually able to get a good amount of work done.
  • Q. Was there a difference between what you anticipated for the first day on GILENYA and what actually took place?
  • A.Not really. It was explained to me what I should expect, and it all went as I thought it would.
  • Q. What does being a GILENYA Guide mean to you?
  • A.I take great pride in being a GILENYA Guide. I am able to tell my story, and I hope that it inspires others to be proactive with their battle with relapsing MS.
  • Q. What would you tell someone whose relapses or disease progression is becoming an issue?
  • A.You have to take action and consult with your neurologist to develop a plan. There are other options, and you can find the right one for you.
  • Q. In what ways, if any, has your journey with relapsing MS had a positive impact on your life?
  • A.With relapsing MS, there are a lot of unknowns, and it affects every person differently. Knowing that actually motivates me to enjoy the present and appreciate all I am able to do now.

*GILENYA can result in a slow heart rate when first taken. You will be observed by a health care professional for at least 6 hours after you take your first dose. You may need to repeat this monitoring if you miss a dose or are a child who is moving to 0.5 mg from the 0.25 mg dose.

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Speak up and share your message. Tell multiple sclerosis (MS) how you really feel by posting your message on our "HEY MS" message board.

Make sure your voice is heard. We love that you want to say "Take This!" to relapsing MS, but there are still some words even we can't use—words that might not be appropriate. They're defined in the Community Guidelines below. But have no fear; we'll give you a heads up if you use any problematic words by highlighting them after you hit submit. So, go for it, and tell relapsing MS how you really feel!

  • Do not include medical advice or any non-approved use of GILENYA

  • No profane, indecent, or inappropriate language in your message or image, please (a no-no)

  • Avoid using your full name and/or e-mail address in your message, so this personal information remains private and protected

  • Do not include spam, such as links to or URLs for other websites or social networks in your message

  • Refrain from sharing any treatment and/or dosage information, as well as names of specific medicines (brand name or generic) and product manufacturers

  • Avoid mention of side effects from GILENYA. We take drug product safety seriously. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call
    1-800-FDA-1088

Please note that in order to comply with our Community Guidelines as well as the FDA's Prescription Drug Advertising Guidelines, your statement may be subject to modification, while maintaining the spirit of your message. Your photo and statement may be used in other GILENYA marketing materials

 
 

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