Wife and mother
Plans family vacations around visiting every Major League Baseball park in the country
How did you react to your relapsing MS diagnosis?
“I was shocked! I went to the doctor because I thought I had a pinched nerve. It wasn't even anything on my radar!”
- Q. How did you go about finding a treatment for your relapsing MS?
- A. “My first MRI was ordered by a neurosurgeon, who is a family friend. He got me in with a great neurologist, who told me what medication he thought I needed to start.”
- Q. How has living with relapsing MS affected you?
- A. “I've been able to meet others with relapsing MS and hear their stories. I am the 'poster child' in my group of friends, who know me as the one with relapsing MS! Everyone that is newly diagnosed—or knows someone who is—gets referred to me for a chat! LOL.”
- Q. Where did you turn for support when you were first diagnosed? Where do you turn now?
- A. “I turned to the Internet for information but didn't have anyone to talk to about it who was also experiencing it. Social media has been so great to hook people up with others who also have it! And I LOVE my friends I met in Los Angeles at a GILENYA event!”
- Q. What would you tell someone who's been recently diagnosed with relapsing MS?
- A. “I actually do this all the time! (Like I said, I am the poster child.) I just share my experience and talk about all the medications that are out there and how great it is to take a pill now instead of an injection!”
- Q. Why did you and your health care professional choose to start GILENYA?
- A. “Because I hated the shots! The needles! I would push back the day I did it or skip a week because I dreaded it!”
- Q. How many relapses were you experiencing before you started GILENYA?
- A. “A couple a year.”
- Q. How many relapses have you had since you started taking GILENYA?
- A. “I've had one relapse since starting GILENYA. I got really sick for several weeks, and all that stress on my body brought a relapse on.”
- Q. What was your first day on GILENYA like? What did you do to pass the time (during the 6-hour monitoring of the first-dose observation, or FDO)?
- A. “My husband, Bobby, went with me. I brought magazines and DVDs. Bobby went to get us lunch. Kind of boring!”
- Q. Was there a difference between what you anticipated for the first day on GILENYA and what actually took place?
- A. “I was a little nervous about that fifth hour, but it came and went. Then I got to go home!”
- Q. What does being a GILENYA Guide mean to you?
- A. “It means I get to share my story and meet great people all over the country! (Have I mentioned that I LOVE my friends I met in LA?)”
- Q. Singer/songwriter and MS advocate David Osmond created a song to inspire others with relapsing MS. Do you have an "I Can Do This" moment?
- A. “I love that song! Yes! I push myself all the time! It's not a 'moment'; it's a lifestyle!”
- Q. In what ways, if any, has your journey with relapsing MS had a positive impact on your life?
- A. “There are too many to count! A closer relationship with God, being able to see how many people care about me, meeting so many great people who are living with MS recently diagnosed, people I speak to during my talks, and being able to share my story through GILENYA!”