Meet the GILENYA Guides

Ineabelle P.

Nurse and sales rep
Enjoys going to the beach and supporting her kids' activities

How did you find out you have relapsing multiple sclerosis (MS)?

I experienced numbness and weakness in my legs, usually after a work-out. I just lived with these symptoms for a year or two, then finally went to a doctor who referred me to a neurologist. The neurologist ordered an MRI and diagnosed me with relapsing MS.

  • Q. How did you react to your relapsing MS diagnosis?
  • A.I knew something about the condition because I have an aunt who has relapsing MS. While I was already familiar, I was also worried about what was going to happen to me and what my future would look like.
  • Q. How has your attitude toward relapsing MS changed?
  • A.I feel much better now. I know that you can still live your life to the fullest with this condition.
  • Q. Where did you turn for support when you were first diagnosed? Where do you turn now?
  • A.My husband. He has always been a great support for me.
  • Q. Why did you and your doctor choose to start GILENYA®?
  • A.After I changed neurologists, my new doctor mentioned GILENYA because I was having trouble with injection-site reactions.
  • Q. What was your first day on GILENYA like? What did you do to pass the time (during the 6-hour monitoring of the first-dose observation, or FDO)?
  • A.When I first got there, I didn't know what to expect. But the medical team took good care of me and made me feel at ease. I watched movies to pass the time.
  • Q. What does being a GILENYA Guide mean to you?
  • A.To me, it's about a support system—especially because I am a Spanish speaker. I hope to be a support for the Spanish-speaking MS community.
  • Q. What would you tell someone thinking about taking GILENYA?
  • A.I would say that every patient is different. But for me, GILENYA works for my lifestyle as it is one pill, once a day.”*
  • Q. Singer/songwriter and MS advocate David Osmond created a song to inspire others with relapsing MS. Do you have an "I Can Do This" moment?
  • A.My 'I Can Do This' moment happens every day. I can continue to work, be with my family, and live my life.
  • Q. In what ways, if any, has your journey with MS had a positive impact on your life?
  • A.It has made me stronger. I appreciate the moments that I spend with my family more, and I have a more positive outlook on life.

*GILENYA can result in a slow heart rate when first taken. You will be observed by a health care professional for at least 6 hours after you take your first dose. You may need to repeat this monitoring if you miss a dose or are a child who is moving to 0.5 mg from the mg dose.

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Speak up and share your message. Tell multiple sclerosis (MS) how you really feel by posting your message on our "HEY MS" message board.

Make sure your voice is heard. We love that you want to say "Take This!" to relapsing MS, but there are still some words even we can't use—words that might not be appropriate. They're defined in the Community Guidelines below. But have no fear; we'll give you a heads up if you use any problematic words by highlighting them after you hit submit. So, go for it, and tell relapsing MS how you really feel!

  • Do not include medical advice or any non-approved use of GILENYA

  • No profane, indecent, or inappropriate language in your message or image, please (a no-no)

  • Avoid using your full name and/or e-mail address in your message, so this personal information remains private and protected

  • Do not include spam, such as links to or URLs for other websites or social networks in your message

  • Refrain from sharing any treatment and/or dosage information, as well as names of specific medicines (brand name or generic) and product manufacturers

  • Avoid mention of side effects from GILENYA. We take drug product safety seriously. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call
    1-800-FDA-1088

Please note that in order to comply with our Community Guidelines as well as the FDA's Prescription Drug Advertising Guidelines, your statement may be subject to modification, while maintaining the spirit of your message. Your photo and statement may be used in other GILENYA marketing materials

 
 

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