Meet the GILENYA Guides

JESSICA B.

Sales and contract negotiator • College student

What was your path to discovering you had relapsing multiple sclerosis (MS)?

My first MS symptom was when 3 of my fingers began to tingle. I thought it might be a pinched nerve, but decided to see a doctor who referred me to a neurologist. By the time I met with the neurologist, I had developed an additional symptom, which felt like an electrical shock that would spread from my head, down my spine, and all the way to my toes. I had an MRI, which was inconclusive, but the spinal tap confirmed a diagnosis of relapsing MS.

  • Q. Then what happened?
  • A.After my diagnosis, I tried to live life the way I always had. But the gravity of it all started to sink in and I got pretty down about my whole situation. I tried several MS medications, but I had to discontinue them for a variety of reasons. I was at a low point and I realized I wasn't going to get better just sitting around.
  • Q. How has your attitude toward MS changed?
  • A.I got to a place where I looked in the mirror and I wasn't happy with who I was. I had let MS take over. I decided it was time to fight back. I did a lot of research and I talked to my doctor about my options.
  • Q. What do others hear you say about relapsing MS?
  • A.MS is part of who I am. It doesn't change who I am. It did for a while. Now that I know how to maintain my life with MS, it is not as big a problem as you might think.
  • Q. How has living with relapsing MS affected you?
  • A.I have experienced the emotional rollercoaster and I did not enjoy it. Today I'm a whole lot better at keeping things even and level. I get the right amount of sleep, exercise, and try not to overdo things. I still go out with the girls from time to time, but I know I want to function and feel good the next day.
  • Q. How did you find GILENYA®?
  • A.I asked my neurologist about GILENYA. I'd been thinking, a medication really can't work well if you aren't good about taking it, and I had to admit I was doing a poor job with the injectable medications. I knew GILENYA was proven to work from the research I'd read. And I figured if I took a once-a-day* pill, I wouldn't always be trying to avoid treatment.
  • Q. Why are you a GILENYA Guide?
  • A.I want to help people who are struggling. They need to know that MS is not the end. It took me a while to really find my way, and if I can help someone else, well, that would be pretty cool, right?

*GILENYA can result in a slow heart rate when first taken. You will be observed by a health care professional for at least 6 hours after you take your first dose. You may need to repeat this monitoring if you miss a dose or are a child who is moving to 0.5 mg from the 0.25 mg dose.

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Speak up and share your message. Tell multiple sclerosis (MS) how you really feel by posting your message on our "HEY MS" message board.

Make sure your voice is heard. We love that you want to say "Take This!" to relapsing MS, but there are still some words even we can't use—words that might not be appropriate. They're defined in the Community Guidelines below. But have no fear; we'll give you a heads up if you use any problematic words by highlighting them after you hit submit. So, go for it, and tell relapsing MS how you really feel!

  • Do not include medical advice or any non-approved use of GILENYA

  • No profane, indecent, or inappropriate language in your message or image, please (a no-no)

  • Avoid using your full name and/or e-mail address in your message, so this personal information remains private and protected

  • Do not include spam, such as links to or URLs for other websites or social networks in your message

  • Refrain from sharing any treatment and/or dosage information, as well as names of specific medicines (brand name or generic) and product manufacturers

  • Avoid mention of side effects from GILENYA. We take drug product safety seriously. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call
    1-800-FDA-1088

Please note that in order to comply with our Community Guidelines as well as the FDA's Prescription Drug Advertising Guidelines, your statement may be subject to modification, while maintaining the spirit of your message. Your photo and statement may be used in other GILENYA marketing materials

 
 

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